MAKENNA
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My daughter was born August 7, 2010 I just found out she has DiGeorge Syndrome. She doesnt seem to have much of the symptoms. She sleeps alot, she might have a narrowing in her trachea which causes her to wheeze alittle, and she has low set ears. She has yet to have all her test done to see if she has any internal problems. I don”t know anything really about this syndrome but what I do know scares the crap out of me!
Latest News
Growing with Grace
Hi! My name is Gracie Chavez, I’m 25 years old, and I have 22q11.2 Deletion. Also, I have 5 siblings and I'm the youngest. I’m a dog mom and an aunt. I own a floral business, and I need to mention I'm a Lego lover!I became an intern because I...
Upcoming Event
3rd Annual Run 2.2 for 22q (Virtual Run, Walk, Ride)
Save-the-Date: May 11-19th, 2024Get active-Raise Awareness-Make a DifferenceOur 3rd Annual Virtual Run 2.2 for 22q will kick off on Saturday, May 11 wherever you like to get active. Whether you prefer to run, walk, or ride, this event is an...